{"id":1280,"date":"2017-06-02T17:16:31","date_gmt":"2017-06-02T15:16:31","guid":{"rendered":"https:\/\/www.istud.it\/sanita\/?p=1280"},"modified":"2018-03-02T17:23:23","modified_gmt":"2018-03-02T16:23:23","slug":"digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births","status":"publish","type":"post","link":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/","title":{"rendered":"Digits and narratives of the experience of Italian families facing premature births"},"content":{"rendered":"<p>[vc_row content_placement=&#8221;middle&#8221;][vc_column width=&#8221;1\/3&#8243;][vc_icon icon_fontawesome=&#8221;fa fa-pencil-square-o&#8221; color=&#8221;custom&#8221; background_style=&#8221;rounded&#8221; background_color=&#8221;custom&#8221; size=&#8221;lg&#8221; align=&#8221;center&#8221; custom_color=&#8221;#ffffff&#8221; custom_background_color=&#8221;#21734c&#8221; link=&#8221;url:https%3A%2F%2Fwww.istud.it%2Fsanita%2Fnews-and-contents%2F%23hash_filters%3Darticolo|||&#8221;][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][vc_column width=&#8221;1\/3&#8243;][vc_column_text]<strong>Pubblicato su<\/strong>: The Journal of Maternal and Fetal Neonatal Medicine[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]Articolo Scientifico a cura di Maria Giulia Marini, Paola Chesi, Martina Bruscagnin, Monica Ceccatelli &amp; Elisabetta Ruzzon[\/vc_column_text][vc_column_text]<\/p>\n<div>The objective of the research was to understand the experience of families living a<a href=\"https:\/\/www.istud.it\/sanita\/ricerca\/nascere-del-tempo-vissuto-delle-famiglie-italia\/\"> premature birth<\/a> and to outline the current care plan in Italy. The survey was addressed to 150 parents of children born under the 34th week of pregnancy. Topics of the investigation were the implications on their family, social and working contexts, determined through a questionnaire enriched by a collection of narratives. Written testimonies were clustered through a Narrative Medicine method and matched with quantitative information. The main respondents were mothers of severe and moderate preterm children. Except for the Kangaroo Care, services were not uniformed amongst the centers and few home care supports resulted available for families. Sixty-seven percent of the mothers could not obtain a prolonged maternity leave and described the impacts on their working activities. Narratives revealed a low level of prevention, information and awareness on the risks of prematurity amongst families, few local networks among Neonatal Intensive Care Unit (NICU) teams, gynecologists and pediatricians, and the shortage of support for parents at work; these actions were collected in a Position Paper. Findings showed the integration between families\u2019 coping strategies and the offered care services for preterm births.<\/div>\n<div>Narrative tools could represent the bridge between families and health care teams.<\/div>\n<p>[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column el_class=&#8221;centered&#8221;]<div class=\"thim-widget-button template-base\"><a class=\"widget-button very-rounded small custom_style\" href=\"http:\/\/www.medicinanarrativa.eu\/wp-content\/uploads\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births.pdf\" target=\"_blank\" style=\"font-size: 14px;border-width: 1;color: #333333;border-color: #333333;background-color: #ffffff;\" data-hover=\"font-size: 14px;border-width: 1;color: #333333;border-color: #21734c;background-color: #21734c;\">Apri l'articolo<\/a><\/div>[\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[vc_row content_placement=&#8221;middle&#8221;][vc_column width=&#8221;1\/3&#8243;][vc_icon icon_fontawesome=&#8221;fa fa-pencil-square-o&#8221; color=&#8221;custom&#8221; background_style=&#8221;rounded&#8221; background_color=&#8221;custom&#8221; size=&#8221;lg&#8221; align=&#8221;center&#8221; custom_color=&#8221;#ffffff&#8221; custom_background_color=&#8221;#21734c&#8221; link=&#8221;url:https%3A%2F%2Fwww.istud.it%2Fsanita%2Fnews-and-contents%2F%23hash_filters%3Darticolo|||&#8221;][\/vc_column][vc_column width=&#8221;1\/3&#8243;][\/vc_column][vc_column width=&#8221;1\/3&#8243;][vc_column_text]Pubblicato su: The Journal of Maternal and Fetal Neonatal Medicine[\/vc_column_text][\/vc_column][\/vc_row][vc_row][vc_column][vc_column_text]Articolo Scientifico a cura di Maria Giulia &hellip; <\/p>\n","protected":false},"author":11,"featured_media":822,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":[],"categories":[13,6],"tags":[42,28,27],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v18.4.1 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Digits and narratives of the experience of Italian families facing premature births<\/title>\n<meta name=\"description\" content=\"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca &quot;Nascere prima del tempo&quot;\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Digits and narratives of the experience of Italian families facing premature births\" \/>\n<meta property=\"og:description\" content=\"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca &quot;Nascere prima del tempo&quot;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/\" \/>\n<meta property=\"og:site_name\" content=\"ISTUD Sanit\u00e0\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/IstudSanita\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-06-02T15:16:31+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2018-03-02T16:23:23+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"600\" \/>\n\t<meta property=\"og:image:height\" content=\"618\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary\" \/>\n<meta name=\"twitter:creator\" content=\"@istud_sanita\" \/>\n<meta name=\"twitter:site\" content=\"@istud_sanita\" \/>\n<meta name=\"twitter:label1\" content=\"Scritto da\" \/>\n\t<meta name=\"twitter:data1\" content=\"Maria Giulia Marini\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tempo di lettura stimato\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minuti\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.istud.it\/sanita\/#website\",\"url\":\"https:\/\/www.istud.it\/sanita\/\",\"name\":\"ISTUD Sanit\u00e0\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.istud.it\/sanita\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"it-IT\"},{\"@type\":\"ImageObject\",\"@id\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#primaryimage\",\"inLanguage\":\"it-IT\",\"url\":\"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg\",\"contentUrl\":\"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg\",\"width\":600,\"height\":618,\"caption\":\"art_evening-600x618\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#webpage\",\"url\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/\",\"name\":\"Digits and narratives of the experience of Italian families facing premature births\",\"isPartOf\":{\"@id\":\"https:\/\/www.istud.it\/sanita\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#primaryimage\"},\"datePublished\":\"2017-06-02T15:16:31+00:00\",\"dateModified\":\"2018-03-02T16:23:23+00:00\",\"author\":{\"@id\":\"https:\/\/www.istud.it\/sanita\/#\/schema\/person\/d2383f3d85bb396445a42b99fbf3fb71\"},\"description\":\"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca \\\"Nascere prima del tempo\\\"\",\"breadcrumb\":{\"@id\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#breadcrumb\"},\"inLanguage\":\"it-IT\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.istud.it\/sanita\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Digits and narratives of the experience of Italian families facing premature births\"}]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.istud.it\/sanita\/#\/schema\/person\/d2383f3d85bb396445a42b99fbf3fb71\",\"name\":\"Maria Giulia Marini\",\"image\":{\"@type\":\"ImageObject\",\"@id\":\"https:\/\/www.istud.it\/sanita\/#personlogo\",\"inLanguage\":\"it-IT\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/b555b81239166b9aaad3bbd2a2e9f15d?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/b555b81239166b9aaad3bbd2a2e9f15d?s=96&d=mm&r=g\",\"caption\":\"Maria Giulia Marini\"},\"description\":\"Epidemiologa, counselor in analisi transazionale. 35 anni di vita professionale in ambito sanitario. Formazione umanistica classica, seguita da studi accademici scientifici, chimica e farmacologia, a Milano. Ha lavorato nella ricerca clinica, \u00e8 passata all'organizzazione sanitaria, ottenendo la specializzazione universitaria in Epidemiologia. Attualmente \u00e8 direttore dell\u2019area Sanit\u00e0 e Salute di Sanit\u00e0 di ISTUD. Fondatore e Presidente in carica nel 2020 di EUNAMES, European Narrative Medicine Society e professore Medicina Narrativa presso La Sapienza, Roma, e nel 2016, referente per l'Organizzazione Mondiale della Sanit\u00e0 per \\\"Narrative Method in Public Health\\\". Autore dei libri nel 2016; \\\"Medicina narrativa: Bridging the gap between Evidence Based care and Medical Humanities\\\", con Springer. nel 2019, con Springer \\\"The Languages of care in narrative medicine: words, space and sounds in the healthcare ecosystem\\\". Nello stesso anno, diploma in Art-coach. Direttore della rivista on-line: Cronache di sanit\u00e0 e medicina narrativa. Pi\u00f9 di 100 pubblicazioni sulla medicina narrativa su riviste peer reviewed e stampa locale e autore sulla pi\u00f9 prestigiosa Enciclopedia Italiana Treccani \\\"medicina narrativa\\\" e \\\"Empatia\\\" nel 2020. Docente in diversi contesti internazionali, dall'Accademia alle Fondazioni pubbliche e private. Nel 2022 autore e editore del libro \u201cHealth Humanities for Quality of Care in Covid-19 times\u201d.\",\"sameAs\":[\"https:\/\/www.linkedin.com\/in\/maria-giulia-marini-eunames-european-narrative-medicine-society-a8383126\/\"],\"url\":\"https:\/\/www.istud.it\/sanita\/author\/mmarini\/\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Digits and narratives of the experience of Italian families facing premature births","description":"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca \"Nascere prima del tempo\"","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/","og_locale":"it_IT","og_type":"article","og_title":"Digits and narratives of the experience of Italian families facing premature births","og_description":"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca \"Nascere prima del tempo\"","og_url":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/","og_site_name":"ISTUD Sanit\u00e0","article_publisher":"https:\/\/www.facebook.com\/IstudSanita\/","article_published_time":"2017-06-02T15:16:31+00:00","article_modified_time":"2018-03-02T16:23:23+00:00","og_image":[{"width":600,"height":618,"url":"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg","type":"image\/jpeg"}],"twitter_card":"summary","twitter_creator":"@istud_sanita","twitter_site":"@istud_sanita","twitter_misc":{"Scritto da":"Maria Giulia Marini","Tempo di lettura stimato":"2 minuti"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebSite","@id":"https:\/\/www.istud.it\/sanita\/#website","url":"https:\/\/www.istud.it\/sanita\/","name":"ISTUD Sanit\u00e0","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.istud.it\/sanita\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"it-IT"},{"@type":"ImageObject","@id":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#primaryimage","inLanguage":"it-IT","url":"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg","contentUrl":"https:\/\/www.istud.it\/sanita\/wp-content\/uploads\/2017\/12\/art_evening-600x618.jpg","width":600,"height":618,"caption":"art_evening-600x618"},{"@type":"WebPage","@id":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#webpage","url":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/","name":"Digits and narratives of the experience of Italian families facing premature births","isPartOf":{"@id":"https:\/\/www.istud.it\/sanita\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#primaryimage"},"datePublished":"2017-06-02T15:16:31+00:00","dateModified":"2018-03-02T16:23:23+00:00","author":{"@id":"https:\/\/www.istud.it\/sanita\/#\/schema\/person\/d2383f3d85bb396445a42b99fbf3fb71"},"description":"Articolo Scientifico su The Journal of Maternal and Fetal Neonatal Medicine relativo ai risultati della ricerca \"Nascere prima del tempo\"","breadcrumb":{"@id":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#breadcrumb"},"inLanguage":"it-IT","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/www.istud.it\/sanita\/digits-and-narratives-of-the-experience-of-italian-families-facing-premature-births\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.istud.it\/sanita\/"},{"@type":"ListItem","position":2,"name":"Digits and narratives of the experience of Italian families facing premature births"}]},{"@type":"Person","@id":"https:\/\/www.istud.it\/sanita\/#\/schema\/person\/d2383f3d85bb396445a42b99fbf3fb71","name":"Maria Giulia Marini","image":{"@type":"ImageObject","@id":"https:\/\/www.istud.it\/sanita\/#personlogo","inLanguage":"it-IT","url":"https:\/\/secure.gravatar.com\/avatar\/b555b81239166b9aaad3bbd2a2e9f15d?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/b555b81239166b9aaad3bbd2a2e9f15d?s=96&d=mm&r=g","caption":"Maria Giulia Marini"},"description":"Epidemiologa, counselor in analisi transazionale. 35 anni di vita professionale in ambito sanitario. Formazione umanistica classica, seguita da studi accademici scientifici, chimica e farmacologia, a Milano. Ha lavorato nella ricerca clinica, \u00e8 passata all'organizzazione sanitaria, ottenendo la specializzazione universitaria in Epidemiologia. Attualmente \u00e8 direttore dell\u2019area Sanit\u00e0 e Salute di Sanit\u00e0 di ISTUD. Fondatore e Presidente in carica nel 2020 di EUNAMES, European Narrative Medicine Society e professore Medicina Narrativa presso La Sapienza, Roma, e nel 2016, referente per l'Organizzazione Mondiale della Sanit\u00e0 per \"Narrative Method in Public Health\". Autore dei libri nel 2016; \"Medicina narrativa: Bridging the gap between Evidence Based care and Medical Humanities\", con Springer. nel 2019, con Springer \"The Languages of care in narrative medicine: words, space and sounds in the healthcare ecosystem\". Nello stesso anno, diploma in Art-coach. Direttore della rivista on-line: Cronache di sanit\u00e0 e medicina narrativa. Pi\u00f9 di 100 pubblicazioni sulla medicina narrativa su riviste peer reviewed e stampa locale e autore sulla pi\u00f9 prestigiosa Enciclopedia Italiana Treccani \"medicina narrativa\" e \"Empatia\" nel 2020. Docente in diversi contesti internazionali, dall'Accademia alle Fondazioni pubbliche e private. Nel 2022 autore e editore del libro \u201cHealth Humanities for Quality of Care in Covid-19 times\u201d.","sameAs":["https:\/\/www.linkedin.com\/in\/maria-giulia-marini-eunames-european-narrative-medicine-society-a8383126\/"],"url":"https:\/\/www.istud.it\/sanita\/author\/mmarini\/"}]}},"_links":{"self":[{"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/posts\/1280"}],"collection":[{"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/comments?post=1280"}],"version-history":[{"count":1,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/posts\/1280\/revisions"}],"predecessor-version":[{"id":1281,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/posts\/1280\/revisions\/1281"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/media\/822"}],"wp:attachment":[{"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/media?parent=1280"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/categories?post=1280"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.istud.it\/sanita\/wp-json\/wp\/v2\/tags?post=1280"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}