{"id":3374,"date":"2019-11-14T18:30:35","date_gmt":"2019-11-14T17:30:35","guid":{"rendered":"https:\/\/www.istud.it\/sanita\/?page_id=3374"},"modified":"2019-11-14T18:42:28","modified_gmt":"2019-11-14T17:42:28","slug":"praxis-prader-willi-excellence-in-care-with-story-taking","status":"publish","type":"page","link":"https:\/\/www.istud.it\/sanita\/ricerca\/praxis-prader-willi-excellence-in-care-with-story-taking\/","title":{"rendered":"PRAXIS – PRADER WILLI EXCELLENCE IN CARE WITH STORY TAKING"},"content":{"rendered":"

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PRAXIS - PRADER WILLI EXCELLENCE IN CARE WITH STORY TAKING<\/h3>

Data inizio progetto: 2019<\/p><\/div><\/div>[\/vc_column][\/vc_row][vc_row][vc_column width=”2\/3″][vc_column_text]<\/p>\n

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Obiettivo del progetto<\/h4>\n

Il\u00a0progetto PRAXIS<\/strong>\u00a0\u2013 voluto dal \u201cGruppo di Studio delle Obesit\u00e0 Genetiche della SIEDP\u201d (Societ\u00e0 Italiana di Endocrinologia e Diabetologia Pediatrica<\/a>) costituito da professionisti di cura desidera raccogliere le esperienze sul\u00a0vissuto di cura dei bambini, degli adolescenti, degli adulti con Prader-Willi, dei loro familiari e dei professionisti sanitari.<\/strong><\/p>\n<\/div>\n

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Perch\u00e9 partecipare?<\/h4>\n<\/div>\n
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Ogni esperienza di Prader-Willi \u00e8 unica e fondamentale e sar\u00e0 trattata completamente in anonimato. I disegni, la scelta delle immagini, le narrazioni non saranno valutate, ma verranno analizzate per permetterci di comprendere come migliorare la qualit\u00e0 delle cure. Ciascuno strumento proposto \u00e8 stato pensato per favorire la raccolta della sua esperienza, sar\u00e0 una sua scelta decidere di seguire tutti i punti o solo quelli che ritiene importanti o aggiungerne altri che secondo lei mancano.<\/p>\n<\/div>\n

[\/vc_column_text][vc_row_inner el_class=”centered”][vc_column_inner][vc_column_text]Iniziativa promossa da[\/vc_column_text][vc_single_image image=”3378″ img_size=”full” alignment=”center”][\/vc_column_inner][\/vc_row_inner][\/vc_column][vc_column width=”1\/3″ el_class=”centered”]

Partecipa al progetto<\/a><\/div>[\/vc_column][\/vc_row]<\/p>\n","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][\/vc_column][\/vc_row][vc_row][vc_column width=”2\/3″][vc_column_text] Obiettivo del progetto Il\u00a0progetto PRAXIS\u00a0\u2013 voluto dal \u201cGruppo di Studio delle Obesit\u00e0 Genetiche della SIEDP\u201d (Societ\u00e0 Italiana di Endocrinologia e Diabetologia Pediatrica) costituito da professionisti di cura desidera … <\/p>\n","protected":false},"author":3,"featured_media":3375,"parent":292,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"categories":[6,33],"yoast_head":"\nPRAXIS - PRADER WILLI EXCELLENCE IN CARE WITH STORY TAKING - ISTUD Sanit\u00e0<\/title>\n<meta name=\"description\" content=\"Un progetto che raccoglie le esperienze sul\u00a0vissuto di cura di persone con Prader-Willi, dei loro familiari e dei professionisti sanitari.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.istud.it\/sanita\/ricerca\/praxis-prader-willi-excellence-in-care-with-story-taking\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PRAXIS - 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